Ga likitoci

Vein of Galen Malformation

Kila ba za ka taɓa ganin ɗaya ba. Idan ka gani, wataƙila zai zama mafi tsananin rashin lafiyar jariri a makonka, kuma ganewar cutar ba abu ne bayyananne ba. Wannan shafi shine abin da muke fata likitan da ya ga 'yarmu an ba shi.

Game da wannan shafi. Kowace magana ta likitanci a nan an dauko ta ne daga littattafan da aka wallafa, aka bincika (peer-reviewed), kuma an haɗa kowanne da tushensa a ƙasa. An rubuta shi ne domin taimaka maka ka gane Vein of Galen Malformation kuma ka mika shi — ba don ya maye gurbin binciken ƙwararre ba.

Yaushe za a yi zaton akwai ta

Gazawar zuciya mai fitar da jini mai yawa (high-output cardiac failure) da ba a san dalilinta ba a jariri
Tare da zuciya mai lafiya a tsari. Wannan shine bayyanar da aka saba gani, kuma sau da yawa ana kuskuren ɗaukarta a matsayin ciwon zuciya na haihuwa (congenital heart disease).
Sautin da ba a saba ba a kai (cranial bruit)
Ki saurara a wurin taushi na gaba (anterior fontanelle) da idanuwa. Ba ya buƙatar kuɗi kuma sau da yawa shine binciken da ke buɗe asirin lamarin.
Girman kewayen kai da ya wuce matsayi (crossing centiles)
Macrocephaly, ko akwai hydrocephalus bayyananne ko babu, a jariri.
Wurin taushi da ya kumbura ko ya tsaya tsaurara
Tare da jijiyoyin fatar kai da fuska da suka kumbura suna bayyana sosai.
Jinkirin buƙasa ko kamewa (seizures) a jariri mafi girma
Tare da babban kai. Waɗanda ake gano su a maƙara sune waɗanda Indiya ke rasawa.

Me za a duba

Duban kwakwalwa da ultrasound tare da colour Doppler ta cikin wurin taushi na gaba yawanci zai nuna ta, kuma yana samuwa a kusan ko'ina. Wannan gwaji ne mai kyau na farko a kowane jariri mai gazawar zuciya da ba a san dalilinta ba, tare da echo mai lafiya.

MRI tare da MR angiography zai bayyana ta sarai. Catheter angiography ana yin ta ne ta hannun tawagar interventional a matsayin wani sashe na shirin jiyya — ba gwaji na tantancewa ba ne.

Inda za a mika

Ana yin maganin wannan ta hanyar endovascular embolisation, yawanci a matakai, ta hannun interventional neuroradiologist ko neuro-endovascular surgeon. Ba tiyata mai buɗe jiki ba ce, kuma ba abu ne na jerin tiyatar kwakwalwa na yau da kullum ba.

Muna lissafa wata cibiya ne kawai bayan mun tabbatar da ita ta wayar tarho tare da sashen kansa — sunan likitan da aka bayar, lambar wayar sashen kai tsaye, hanyar mikawa, da ranar da muka ƙarshe tabbatar da ita.

Wannan matsayi ne mai tsauri da gangan, kuma muna riƙo da shi: ba mu wallafa sunan asibiti ba sai mun yi magana da wannan sashe da kanmu. Idan kana da yaro a gabanka yanzu, ka aiko mana saƙo ko ka rubuta imel zuwa contact@vogmindiafoundation.org kuma za mu gaya maka abin da muka sani.

Idan kana yin maganin wannan yanayi

Muna son mu ji daga gareka, kuma muna son mu lissafa ka. Ƙungiya ce ta iyaye, ba kasuwancin mikawa ba ne — ba mu karɓan kuɗi daga kowa, kuma ba mu da wata alaƙa ta kasuwanci da kowane asibiti.

Muna kuma son mu san wani abu da babu wanda a Indiya ya sani a yanzu: nawa ne yawan waɗannan yara. Babu rajistar Indiya, babu adadin masu kamuwa, kuma babu bayanan tarihin cutar. Idan ka taɓa yin maganin irin waɗannan lamura, muna matuƙar son mu yi magana da kai.