Kwiingcali zonyango

Vein of Galen Malformation

Usenokungaze uyibone. Ukuba uyibonile, mhlawumbi iya kuba lusana olugula kakhulu kunazo zonke kule veki yakho, kwaye isifumaniso asicaci lula. Eli phepha yiyo loo nto besinqwenela ukuba ugqirha owabona intombi yethu wayenikwe yona.

Malunga neli phepha. Sonke isibhengezo sonyango apha sithathwe kuncwadi olupapashiweyo, oluhlolwe ngoontanga, kwaye ngasinye sidityaniswe nomthombo waso ngezantsi. Ibhalelwe ukukunceda uqonde i-Vein of Galen Malformation uze uyithumele kwenye indawo — hayi ukuthatha indawo yovavanyo lwengcali.

Xa umawukrokrele oku

Ukwehluleka kwentliziyo okungaqondakaliyo (high-output cardiac failure) kusana
Enentliziyo eyakhiweyo kakuhle ngokwesakhiwo. Le yeyona meko iqhelekileyo kwaye idla ngokugqithiselwa njengesifo sentliziyo esizelwe naso.
Isandi esingaqhelekanga entloko (cranial bruit)
Phulaphula ngesibhulubhulu kwindawo ethambileyo yentloko ngaphambili nakumehlo. Akubizi nto kwaye idla ngokuba sesona sifumaniso siqhawula ityala.
Umjikelo wentloko ogqithisa kwiitafile zokukhula (centiles)
Ubukhulu bentloko obungaqhelekanga (macrocephaly), nokuba kukho okanye akukho i-hydrocephalus ecacileyo, kusana.
Indawo ethambileyo entlokweni evuvukeleyo okanye eqinileyo
Enemithambo-gazi evuvukeleyo, ebonakalayo, entlokweni nasebusweni.
Ukulibaziseka kokukhula okanye ukuxhuzula kusana olukhulileyo ngakumbi
Enentloko enkulu. Abo babonakala emva kwexesha ngabo iIndiya ingabaphosiyo.

Oko omawukufote

I-cranial ultrasound ene-colour Doppler ngasendaweni ethambileyo yentloko ngaphambili idla ngokukubonisa oku, kwaye ifumaneka phantse yonke indawo. Luvavanyo lokuqala olunengqiqo kuso naliphi na isana esinokwehluleka kwentliziyo okungaqondakaliyo kunye ne-echo eqhelekileyo.

I-MRI ene-MR angiography iyichaza kakuhle. I-catheter angiography yenziwa liqela lonyango njengenxalenye yocwangciso lonyango — asiluvavanyo lokuqala.

Apho ungathumela khona

Oku kunyangwa nge-endovascular embolisation, ngesiqhelo ngamanyathelo, ngugqirha we-interventional neuroradiologist okanye umhlinzi we-neuro-endovascular surgeon. Ayilotyando oluvulekileyo, kwaye ayisiyomeko yoluhlu lotyando lwengqondo lwesiqhelo.

Sidwelisa iziko emva kokuqinisekisa ngomnxeba nalo ngokwalo isebe — igama lengcali ejongene nalo, inombolo yefowuni ethe ngqo yesebe, indlela yokuthumela isigulane, kunye nomhla wokugqibela esiqinisekise ngawo.

Lowo ngumgangatho ophezulu ngabom, kwaye siyawugcina: asipapashi igama lesibhedlele size sithethe nalo isebe ngokwethu. Ukuba unomntwana phambi kwakho ngoku, sithumele umyalezo okanye uthumele i-imeyile ku-contact@vogmindiafoundation.org size sikuxelele oko sikwaziyo.

Ukuba uyinyanga le meko

Singathanda ukuva kuwe, kwaye singathanda ukukudwelisa. Singumbutho ophethwe ngabazali, hayi ishishini lokuthumela izigulane — asithathi mvuzo kubani na, kwaye asinabudlelwane boshishino nasiphi na isibhedlele.

Singathanda nokwazi into engaziwa mntu eIndiya ngoku: ngaphi na abantwana abanjalo bakhona. Akukho luhlu lwesizwe, akukho nani lokubakho (incidence), kwaye akukho datha yembali yendalo yaso. Ukuba unyangile amatyala anje, singathanda kakhulu ukuthetha nawe.