Tangira pano
Wangobva kuudzwa.
Fema zvishoma. Chirwere ichi chinogona kurapwa, uye vana vanacho vanokura.
Zvichida watotsvaga mashoko nezvazvo, uye zvichida watoverenga zvimwe zvinotyisa. Zvakawanda zvakanyorwa nezve Vein of Galen Malformation pa-inturaneti zvinotaura nezvevacheche vanorwara zvakanyanyisisa, kana kuti zvinotaura kuti zvaimira sei makore makumi matatu apfuura. Hapana kana chimwe chinomiririra mwana wako.
Chinhu chekutanga chekunzwisisa
Kurapwa uku kunonzi embolisation. Chiremba anopinza tyubhu yakatetepa chaizvo ichipfuura nemutsipa weropa uye anovhara kubatana kusina kufanira kubva mukati. Dehenya harishandurwi. Kazhinji kunoitwa zvichitevedzana, mune kurapwa kunopfuura kamwe chete.
Munhu anozviita nyanzvi yekurapa mitsipa yeropa yepauropi (interventional neuroradiologist). Vashoma chaizvo vari muIndia, uye ichi hachisi chinhu chinofanira kuedzwa nachiremba wekuvhiya uropi asina rudzidzo urwu.
Mibvunzo yekubvunza, usati wabvuma chero chinhu
Une mvumo yekubvunza mibvunzo iyi. Chiremba akanaka haazvirambidzi. Inyora pasi uye uende nayo, nekuti hauzoikayeuki uri mukamuri.
- Makatorapa vangani vane Vein of Galen Malformation imi pachenyu? (Kwete ma-brain AVM. Ichi chete.)
- Pane here nyanzvi yekurapa mitsipa yeropa yepauropi pano, kana kuti tichatumirwa kune imwe nzvimbo?
- Chipatara ichi chine here dhipatimendi rinochengetedza zvakanyanya vana vane matambudziko europi?
- Ndechipi chirongwa kana mwana wangu achida kurapwa nekukurumidza, uye kudini kana tikamirira?
- Munganyora here chirwere chandinacho nechirongwa, kuti ndiende ndinotsvaga mumwe muzivi wechipiri?
Zvinhu zviviri zvakakodzera kuudza chiremba wako
Hatisi vachiremba, uye izvi hazvisi mirawo. Zvinhu zviviri izvi zvakatsanangurwa zvakanaka mumabhuku ezvekurapa, izvo mhuri dzisingawanzoudzwa, uye zvaune kodzero yekubvunza.
Kana mwana wako asati azvarwa
Kwaunozosununguka nemaitirwo azvo kunokosha, nekuti maawa ekutanga anogona kukosha. Kumbira kuti utumirwe kunzvimbo inogona kurapa ichi usati wasununguka, kwete mushure — kutamiswa kunonyanya kuoma kana mucheche atoberekwa ari kurwara, kupfuura kana uchiri mumimba.
Kana mwana wako achida kuzoda kurapwa mumazuva ekutanga eupenyu hwake, zvakakodzera kubvunza vazhinji vekurapa nezve kushandiswa kwemutsipa weropa uri parukukwe (umbilical arterial line) paanenge achangozvarwa. Izvi zvinofanira kurongwa nguva isati yasvika, uye zvinogona kuita kuti kurapwa kuve nyore.
Uye kana kurapwa kusingakwaniswi nekukurumidza, kunowanzodiwa mucheche asvika kuma mwedzi mana ekuberekwa. Ichi hachisi chinhu chekusiya wakachimirira.
Hapana chawakaita chakakonzera izvi
Iyi ndiyo mutsara watinonyanya kuda kuti uverenge, uye unobva kuGreat Ormond Street Hospital: Vein of Galen Malformation haikonzerwi nechinhu chero chipi chakaitwa kana kusaitwa naamai vemwana panguva yepamuviri. Inoumba mumavhiki ekutanga, nguva refu isati yaziviswa nemunhu. Mazhinji emakesi haana chikonzero chinozivikanwa zvachose.
Kwete nyaya dzose dzinopera zvakanaka. Asi mwana wese ane chirwere ichi anokosha, angava achiripo nesu kana kwete — uye kana wakarasikirwa nemwana wako, tiripowo kwauri.
Hausi wega.
Taura nesu
Mumwe wedu akambomira chaipo pauri kumira izvozvi. Hatizokupe mazano ekurapa, asi tinogona kukubatsira kuziva kwaunofanira kuenda uye kuti unogona kubhadhara sei — uye tinogona kuteerera.
Kana mwana wako asina kumira zvakanaka izvozvi, usamirira isu. Enda kuchipatara uye ukumbire kuti vataure nenyanzvi yekurapa mitsipa yeropa yepauropi yevana. Wobva watitumira meseji.