Vein of Galen Malformation
Mwana wako aonekwa aine Vein of Galen Malformation.
Inogona kurapwa.
Vana vane chirwere ichi vanokura vave vakuru. Chinonetsa zvikuru haisi kurapwa — ndiko kuwana chiremba anogona kuita kurapwa uku, panguva yakakodzera. Ndizvo zvatiripo.
Chikonzero chatiripo
Mwanasikana wedu paakaonekwa aine chirwere ichi, taisaziva kuti aipo munhu muIndia aigona kumurapa. Zvakatora tsamba yepa-email yataitumira kune chiremba ari kuNew York kuti tizive kuti uyo aigona kumurapa aiva kuChennai.
VOGM India Support Foundation iripo kuti hapana mhuri inozorasikirwa nenguva yakadaro zvakare. Tiri kugadzira runyorwa rwakasimbiswa rwezvipatara nevachiremba vari muIndia vanonyatsorapa chirwere ichi, tinotsanangura kuti kurapwa kunogona kubhadharwa sei, uye tinoramba tiri nemhuri kusvikira vasvika ikoko.
Takatanga izvi nekuti taivawo rimwe remhuri idzodzo.
Taura nemunhu akambosangana nazvo
Tiri vabereki vaviri, kwete chipatara uye kwete sevhisi yenguva dzengozi. Kana mwana wako asina kumira zvakanaka izvozvi, enda kuchipatara uye ukumbire kuti vataure nenyanzvi yekurapa mitsipa yeropa yepauropi (interventional neuroradiologist) yevana. Wobva watitumira meseji, uye tichakubatsira kuziva kwaunofanira kuenda uye kuti unogona kubhadhara sei.
Tinopindura mukati memaawa 48. Tiri sangano revanhu vaviri, uye ndiwo muverengo wechokwadi.