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Vein of Galen Malformation

Your baby has been diagnosed with a Vein of Galen Malformation.

It can be treated.

Children with this condition grow up. The hardest part is not the treatment — it is finding the doctor who can give it, in time. That is what we are for.

Sakthi, five years old, arms out and running, laughing, in front of the Luxembourg Palace in Paris.
Sakthi was diagnosed before she was born. She had several embolisations, and later a shunt. She is five years old, and she is thriving. Her story

Where to go next

Start here

I have just been told.

What this actually means, what happens in the next few days, and the questions to ask before you agree to anything.

Read this first

For clinicians

I am a doctor.

Red flags, what to image, what not to do, and who to call.

Referral guidance

I want to help.Who we are, and what we need.

Why we exist

When our daughter was diagnosed, we didn’t know that anyone in India could treat her. It took an email to a doctor in New York to find out that the one who could was in Chennai.

VOGM India Support Foundation exists so that no family loses that time again. We are building a verified list of the hospitals and doctors in India who actually treat this condition, we explain how the treatment can be paid for, and we stay with families while they get there.

We started this because we were one of those families.

Read Sakthi’s story

Talk to someone who has been through it

We are two parents, not a hospital and not an emergency service. If your baby is unwell right now, go to a hospital and ask them to speak to a paediatric interventional neuroradiologist. Then message us, and we will help you work out where to go and how to pay for it.

Message us on WhatsAppcontact@vogmindiafoundation.org

We reply within 48 hours. We are a two-person organisation, and that is the honest number.